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Useful CPSP YouTube videos

Nige

There is very limited information on living with cpsp on a medium or long term basis but there are lots of quite useful YouTube videos out there. Please add any further valuable ones to this post
Dr Tara Tobias
Both cover neuropathic pain

Post Stroke channel
Heavy Leg

Chronic Pain types incl cpsp

This is very long, nearly 2 hours
. Please don’t let that out you off. It is with a very knowledgeable guest.

Pando

I prefer Newland to Tobias. Sorry that’s not a constructive remark.
Anyway try this chap, Arjan Kuipers, a functional neurologist here talking about fatigue post stroke

Nige

Pando he mentions pain in his intro but looks like stroke pain not covered which is a shame

Nige

Pando he mentions pain in his intro but looks like stroke pain not covered which is a shame

Pando

Nige There is plenty of stroke material covered by Arjan ; he’s probably one of the best functional neurologists who have dedicated their lives to helping people with strokes. it took me 6 months to complete his course at brain.rehab . Try it ; it’s free.

Simon

I’m glad you’ve started a thread on the topic of good youtubers and glad that you put Tara and Elyse at the top because I was always referring to them when putting stuff on the Joke Association site

I think we want to extend the tagging of this AND there are several other good folk to add.

We may be want the link to the channel as well as / rather than to individual videos?

I think this bears upon the question you asking WhatsApp about organising everything. I think we just chuck everything on my platform and then we start to include links and tags to organise what stands out as good quality contributions.
I think the cream will rise to the top as we go rather than our ability to get it right ‘before we start’

3¢ 😄

Nige

Simon maybe we could have a separate section just for the channels we think add value ?
Personally I only subscribe to the one. I tend more to be searching for specific items or cpsp. I have to go through so many I have watched already to try to find something new

Simon

Yep and the sections are called ‘tags’ So for example here’s one entered by typing hash r and then selecting from the list presentedResources

Now if you go to the forum search bar and you put in aResources (he said not actually having tried it previously🙂 ! )…

And ok now he has already tried it It’s not working quite as I expected

If you go to the tags display which has the major hierarchical categories as blocks first and you go to the very bottom and tap the resources tag you get the conversations tagged resources and in the search bar if you put resources you get everything that mentions it but not as a tag

I started a bugs and features discussion on the developers forum so I’ll add this - the developers forum is
https://discuss.flarum.org/
Caio
Simon

Nige

One of the more helpful ones. Would highly recommend

Scroll-Me :)\<-&->


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