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#uksf2025 Call for Abstracts is open till 20th May

Simon

Details

See link www.stroke.org.uk/professionals/uk-stroke-forum/uksf-abstracts Which doesn’t preview properly but does open properly When clicked on

https://www.stroke.org.uk/professionals/uk-stroke-forum/uksf-abstracts)

Anyone want to submit?
Co-submit?

Ruthy

Simon are you thinking about/planning to submit for S.I.G? I’m assuming the poster you did for Prague is in there already as a submission.

Simon

Ruthy

Well I think there’s lots of options.

I think I learnt enough from Prague to put @Andrew ’s comment about “in my experience people just ignore the posters” into context and I would radically redo any poster!

I do think that we SH-C-ould present in relation to SIG & the hybrid hubs concept which has a steering committee tomorrow at which a circular for use by clinicians is due to be distributed

I’ll post when I see what goes out in the reminder call to meet

I also wondered if other people had themes for example @Nige something on the lack of CPSP support - But I’d rather topics that were positive so perhaps ”where stroke thrivers see opportunities for institutions to meet our needs"

That might just end up being sig from another not very different angle?

Anyway I’m putting it out there to see what discussion between ourselves raises.

One person can put in up to five abstracts so between us we could generate quite a lot!

Ciao
Simon

Ruthy

Thanks Simon. Yes, I understand where @Nige is coming from, it’s sometimes difficult to find the positives. In fact I was speaking to my massage therapist yesterday about my frustration with online pain rehab program and she said she’d have a look for local face to face pain groups, but she quite rightly said the problem can be that in these sorts of groups that they can end up bringing you down because of the negative feelings and thoughts (I can definitely be one of those people). I’ll have a positive mind mapping session with myself for ideas 😃💡👍

Nige

Ruthy it would have been good to meet up with people who had chronic neuropathic pain I feel as we would have so much in common.
Yeh there might be a lot of moaning but sometimes that’s no bad thing. Brings out that laughing at grim things as well.
Is that a British thing finding humour in what would be something pretty depressing?

Ruthy

Nige Yeah I think it is, it’s sort of like a defence mechanism sort of thing too 😆😆

Andrew

Going back to my quotation, "in my experience people just ignore the posters” , it is the conversation that you have with real live people that is more important. Perhaps this quotation is a little strong, for the poster is a quick gateway in to yoru work. If you are not that interested, then you turn to next poster say ten seconds later - it saves a lot of time. If you are interested, then you talk. So the poster is useful, even if many don’t read it.

Simon

Andrew
Yes I fully agree
That’s why I stood with it most of the time.
A couple of those conversations might see new attendees at today’s cafe. They have seen conversation this week but not every conversation of people’s intents turns into people’s actions

2 edits I suggested that didn’t happen where a huge QR code and a HUGE TL;DR.

In fact I now think they would be the 60% of the poster’s job

And back to the Do folk fell minded to respond to the Call for Abstracts?

🙂

Andrew

Simon For westerners used to hustle and bustle, and with their busy lives, what I said is probably true. Our Malaysian friends are more likely to read much more because of a sense of duty. Same for some other nationalities just because of their culture. I even heard of one participant who had to give his/her supervisor a report on posters and talks since the supervisor was unable to attend. However, the long and the short of it is that we pay attention, try to avoid long screeds of text, be short and to the point not missing the important stuff out. It certainly helps one’s own ideas out. And there’s always the talking. That is the most important.

Nige

Perhaps some of the most eye catching posters of late have not been big corporate adverts for the biggest companies in the world but those produced to make a point

Nige

Simon

Both of those have ‘correctly’ used the time the average member of the public will give them

I was thinking we could apply to present.

Both would get us into the conf (I think as presenters we’d also be with expenses paid ) then we can then network & lobby.

It might not be as productive as Prague where there was specifically a lived experience invite.

@EmeraldEyes / @Pando (Anyone else with an ID) would you both please put a post in the other place to say "The Simon that many of you had found helpful is looking for co-producers of an abstract to the UK stroke forum in Aberdeen in November.
Is anybody interested
details here
https://stroke.logicalmodel.net/flarum/public/d/274-uksf2025-call-for-abstracts-is-open-till-20th-may/1

Ciao
Simon
No sweat if it’s too close to the politics for you 🙂

Ciao
Simon

Simon

So the deadline closed at midnight last night

I have submitted two
suitably working links in post below

Andrew

Simon Need the email address and password to access this!

Simon

Andrew
There is are public links - I wasn’t sure if these were the ones
I’ve asked for the right ones to be sent
I can revest engineer them with some research which I will do if I don’t get a swift answer

[edit]
here they are

hybrid hubs
Collaboration between peers

Andrew

Simon Thanks, but I must be doing something wrongly, for they still don’t link!

Simon

1st

135

Empowering #StrokeThrivers Worldwide: Evolution of Stroke Support

Mr Simon Harris1, Mr Gary Millar2
1Stroke Improvement Group et al. 2Stroke Buddies

Abstract Introduction

Nothing matches lived experience. Something clinicians and researchers cannot replicate. Stroke survivors, carers, and families (#StrokeThrivers) face challenges accessing empathetic, appropriately paced support.

Survivor-led initiatives are advancing empowered, engaged, community-driven advocacy. Peer collaborations demonstrate new models for integrating lived experience into formal pathways to improve care.

Aims:

Show how (global!) connection of survivor-centered advocacy groups leads to innovation in scalable frameworks for embedding viscerally knowledgabe support into formal stroke pathways.

Abstract Method

The Stroke Improvement Group (SIG): Runs an open-access forum focused on inclusivity and collaboration, with activities including peer communities, resource sharing, advocacy and developing practice guidance for leveraging digital communities in formal care.

Stroke Buddies: Delivers practical, survivor-driven rehabilitation education and emotional support via YouTube, Facebook, and online meetings, reaching over 20,000 globally.

Both groups emphasize: respect, emotional validation, practical support, transparent governance, survivor leadership, and collaboration with professionals and ensuring survivor needs are central to all activities.

Abstract Results or details of the Case Report.

#Emergence of new Services Delivery norms through Co-developed survivor centric resources
Educational content/ CPD for professionals in how-to leverage hybrid rehabilitation
Reduced service stress
Increased quality of life

Abstract Conclusion

Partnership between Stroke Buddies, SIG and others exemplifies the transformative inevitability of survivor-led, digitally enabled community influence.

Combining peer support, advocacy and formal pathways out-reach is innovation that bridges gaps between formal services and becomes a template for collaborative, patient-centered service improvement everywhere

We urge integration of survivor-led groups into stroke strategies, inviting policymakers and practitioners to co-create scalable, inclusive, and effective stroke care pathways with us

Abstract Type - Service Development, Quality Improvement, Education and Training

Abstract Category - Other

2nd

139

Hybrid (Digital and In-Person) Rehabilitation Hubs: Models for Peer-Driven, and Professionally Supported Care

Mr Simon Harris1, Dr Charlie Chung2, Dr Fiona Strachan3, Dr Duncan Oentland4
1SIG. 2Nhs. 3Edinburgh University. 4Queen Margaret University

Abstract Introduction

The need for information to ‘sense make’ the affects of trauma is commonly unmet by acute care. Access to professional input for rehabilitation typically drops-off after the initial months leading to feelings of abandonment and unmet needs.
Peer support and self-management are recognized as critical to sustained progress. Support services lack integration and capacity.

Abstract Method

Evaluate hubs combining digital with in-person elements to enable self-directed recovery supported by peers and professionals.

NHS Lothian, University of Edinburgh, Queen Margaret University, and the Stroke Improvement Group jointly applied for funding via the BHF Healthcare Innovation Fund

Abstract Results or details of the Case Report.

Enhance motivation and adherence to self-directed rehabilitation.
Reduced isolation and abandonment.
Emotional and social support through peer networks.
Timely Needs-driven access to advice from professional and rehabilitation technologies
Data for AI-driven service improvement and personalization.

Abstract Conclusion

Hybrid hubs are scalable, sustainable, and person-centred approaches to Life After Stroke.
Integrating digital and physical communities, and peer plus professional support addresses gaps in current services and aligns with policy priorities.
Our collaborative, co-designed approach offers templates for care pathways.

Abstract Type - Service Development, Quality Improvement, Education and Training

Abstract Category - Other

Andrew

Simon Brilliant! Many thanks.

Simon

Hi all
I had replies to the two abstracts yesterday.

The first one was accepted for a poster 🙂
the second was not selected 🙁

I have in mind, After the experience of Prague, that the poster should just carry the title and the QR code that comes back to here with a thread That expands to the different avenues.

People take photographs of the posters but they don’t read them particularly so the title and the QR code would put the link in there phones and one easy shot

Maybe a footer that says “post me to social media”

Ciao
Simon

Scroll-Me :)\<-&->


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