Notice:

This post is a wiki post others can pitch in (if I’ve set it up right & if not tell me!!)
If you are not in the Group @WikiEditors and want to add to this list then message @Admins (<–Click|Tap)

Warning! Some of the links below sometimes format with error messages 🙁
It is because they don’t ‘play-nice’ with web-previewers and NOT (at the time of writing!) that they’re wrong.
Just Click | Tap on their links and they will work OK)

What we think are useful sources of support

Organisations & charities that can help are linked below
(Ctrl-Click to open links in newTab or on mobile Tap and use the Browser’s back-button to return here)

Our Stroke Zoom cafes Click | Tap the link in the green box to join now - you’ll be on your own if it is not an arranged time! You can arrange times and use the link too

Thursdays from 1pm uk time on https://bit.ly/StrokeCafe
Different Strokes WebSite and you can Call +441908 317618 or +44345 130 7172
- There is an interactive map of DS face-to-face groups in the next section below
- Details and dates for DS online cafes
- https://differentstrokes.co.uk/stroke-information/information-pack/
  - There’s a lot of Different Strokes information packs. One of which is on benefit entitlements - about halfway down the list available info packs
  - There is also one for children about how to cope with a stroke of a family member (¾ of the way down)
CarersUK contact
Sadly Carers are a neglected force for good 🙁
Age uk Contact Details inc. phone
Chest Heart and Stroke Scotland https://www.chss.org.uk/
LOTS of good info/resources where ever in the world you live
☎️ Helpline: 0808 801 0899
📧 adviceline@chss.org.uk
🌐 https://www.chss.org.uk/services/chest-heart-stroke-scotland-advice-line/
Stroke Association’s Web-site
- Here For You service Sign-up form
  8 weekly calls from a volunteer peer Survivor or Carer
- SA Online ‘Biscuits & Bingo’ sessions Sign-Up form
- There is a lot of info buried under the DONATE Donate donate banners and pop-ups. By donate they primarily mean Money as several sites (including this one) exists because of there response to the giving of time and expertise by anyone who makes improvement suggestions.
  - The experts in what is on their website that may be relevant to you are on
    📧 mailto:helpline@stroke.org.uk and
    ☎️ 0303 3033 100
- Opening hours and details at:https://www.stroke.org.uk/about-us/other-ways-contact-us
- There is a link to the interactive Map of Face-2-Face Support Group ‘affiliated’ by SA but Volunteer run in the next section below
Citizens Advice Local Contact-Us page
CAB offer great advice about benefits and navigating the welfare state as well as your legal rights and many other challenges as your family adjusts to post stroke challenges.
Fill-in the horrendous PIP forms is a recommended service! They aren’t the only source of help on this
- This is the link to “the find help near my postcode” page on their website
  https://www.citizensadvice.org.uk/about-us/contact-us/nearby/
Aphasia
- https://www.aphasiasupport.org
- Aphasia Technology Finder - https://www.aphasiasoftwarefinder.org/
  The Tavistock Trust For Aphasia have other resources too
UK Acquired Brain Injury Forum
- https://ukabif.org.uk/ - Lots of resources !
- The excellent series of ‘Sign-Posting’ resources https://ukabif.org.uk/page/signpost
- They have links to approved Lawyers(Lots) and Barristers (1!)
ACAS
For when you need to know about employment rights
- https://www.acas.org.uk/advice
- https://www.acas.org.uk/contact
- Helpline 0300 123 1100 (Multi-lingual help)
- Relay UK text relay: 18001 0300 123 1100.
NHS England and Wales PALS (Advice, Liaison & Complaints Service)
NHS Scotland PASS (Advise, Support & Complaints) & ChatBot

Finding Volunteers Groups

Find groups run by volunteers from the hundreds of available.

Not all are affiliated (because that adds un-wanted corporate brand pressures

Different Strokes Interactive Map
- URL=https://differentstrokes.co.uk/all-groups/
  (Keep your cursor out of the sub-widow if you want to scroll this the parent page! 🙂 )
- https://differentstrokes.co.uk/all-groups/
Independent groups have to be found through word-of-mouth and pin-boards in Dr Surgeries & Church Halls etc
Stroke Association Interactive Map (Doesn’t play-nice What an irony 🙁 )
- URL=https://www.stroke.org.uk/stroke/support/groups/map-local

Organisations that may help

There are many - here are a few uk ones
ToDo: lets have some country specific links 🙂

Please add what you know to be helpful

Simon